Who's good out here? What are your thoughts. I was told this could save my sons butt for a lack of a better term.

Anyone have a diagnosis of Autism/Aspergers reversed at madigan? We did. He was 5. They said ADHD/PDD. long story short it's been a night mare. We wound up at the Kootanie Behavioral center in Idaho. He received observational therapy and testing. They said in Idaho "How did they reverse this?" How have you guys survived?" His meds were wrong his school was wrong everything. Now I'm cleaning house. The head doc at developmental peds at madigan called personally and will be over seeing his case and care now. Its been hell, with hope finally here now. His meds are right and he says he feels great. 

And its not madigans fault.....it was ONE Doctor. Now I'm being assured the proper changes can and will be made. 

We loved the Children's Therapy Unit at Good Samaritan in Puyallup. 

My son used to get ABA therapy through Maxim, but now we get it through AST. I like AST better, but honestly I just switched because I liked his tutor and she was switching companies! He gets it everyday and has been a life saver because doing homework with my son was my biggest chore, now she does it with him! 

I don't know, we don't have ABA therapy, it's been mentioned but the docs say he's too young to benefit at this point. Just wanted to say that I'm glad you're getting things taken care of, my experience with the developmental clinic has been fricking amazing. I absolutely love the docs on Nathaniel's team. 

Misty P. Who referred you.?

Sandra, how did you go about hooking him in with everything?

Awesomesause Yeah I can't really blame DP..it was a hard case. 

Specifically for ABA I like UW Tacoma Autism Center best...most experience out here by far...my son saw Charu...she is awesome! 

and whoa...awesome sauce, who told you that?!!! if he is young enough to be diagnosed, he is young enough to get ABA!!! it's THEE most basic of therapies, involving your child functioning to the best of his capabilities in his every day life, there is no age limit to that !!! I urge you to bring that up! our son started therapy at 2 and half /three and early intervention is EVERYTHING! I have never heard a dr. or therapist says to wait~ my son is now 7 and went from very sever to very high functioning with two years of INTENSE aba/speech/ot therapy and some biomed interventions...he is now 100% mainstream, no IEP, no special accommodations and top of his class-it wouldn't be this way if we hadn't started therapy right away. 

Oh there hope. 

Brenda, maybe I misunderstood then- he is already in Birth to 3 early intervention, has physical/occupational/speech and feeding therapies :) I brought up ABA, as it was suggested to me by a nice lady in the pharmacy waiting area, and they said any further therapies (like behavioral) wouldn't come into play until later. He's still little, only 16 months :) still getting constant evaluations and new diagnoses. 

Hmm birth to three may already be doing aba basically if you meet with them in your home? ABA is basically something you can get from get go all the way to adulthood....so ABA for a 16 month old would involve helping him move toward normal 16 mo old activities and so on, as he grows :) it's very basic early on, like for someone that age, just coming when mama calls, or letting themselves be held/carried, or not fighting being put in the carseat etc~ I know the feeling when you have 1 million and 1 therapies, but good for you for starting EARLY!! there is LOTS of hope :) 

You will be referred to ECHO and then the companies will start calling you 

Good to know. I'm overwhelmed, but excited. Not sure I have grasped the full affect of that reversal ....how much time we were robbed of. 

yah for sure! and was told by my sons Dr. that "they don't do reversals" because it can be damaging if symptoms reappear later on in life and make it hard to reinstate services.....it only takes on tool to screw things up! 

Because he held eye contact so well....and is wickedly clever he felt the personality of a Autistic child was not present. Problem is...my son can mock social pattern. This was observed in the inpatient care in Idaho. See a few visits are not enough. It took this Doc meeting with him daily for a week, while other staff logged everything else he did. He's incredibly intelligent. His IQ is high.....yet he can't even make up a pretend game with toy cars....said because they were not "his" toy cars he couldn't feel right about it. This was just one of the many tests they did. He complains of his brain holding to many files.....and when he tries to retrieve information its like watching a human computer. This disorder has robbed my son of joy at times....it has left me lost and feeling so confused. I want to break into his brain and fix it....this malfunction ....what good is intelligence if you can't even function in normal society. He's in a tiny special needs class already tucked away from everyone with children who are like him. How will he ever survive out there? Will he become mad like other highly intelligent people have? Will he become antisocial and continue to withdraw from the world....these questions keep me up at night. 

I don't mean to put these kids down. I guess I'm just overwhelmed. 

It's perfectly normal to feel overwhelmed. I'd suggest trying to connect with other moms in similar situations, try to pick their brains for tips on how to cope and work toward improvement. 

Thanks. Good idea. I guess I always did my best to avoid those groups ....because I didn't want to relate. 

There are several ABA therapy companies in the area. The best bet is to do your research and be sure the "therapists" are credentialed. You don't want someone working with your child who isn't properly trained. 

MyOpinion, my friend is an ABA therapist on base and ehr son has Aspergers. he just turned 5. She lives in Sount Hill, but Im sure I can get whatever info you need? 

MyOpinion, got my my facebook page and to my friends list. My friends name is Angela Welch. Shes the ABA Therapist. Her son Colin has Aspergers. Im sure she wouldn't mind you messaging her =] My facebook is under HJME413@aol.com 

We use AST as well and love our therapist. We used to use Apple but they dropped the ball big time. My son is diagnosed with Autism PPDNOS super smart but has problems with social situations. 

Thanks MMof6
For all the info. I'm starting in January to make my inquiries.
Thanks Katena, as well. 

wow! this is kind of scary to me... I am guessing I will have my son seen OFF Post then. He just started the Autism Screening here at Womack Medical Center in Fort Bragg. We are coming back to Ft Lewis in June. this is good to know about... I'd rather them not screw up my son's evaluation and health care. thanks for the heads up... :) 

do you know if they have Project Play in Tacoma area? that is the therapy I would like my son to do... 

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